Dad Writes Incredible Book About Son Being A Superhero Before His Son Passes Away
After receiving some devastating news about his only, young son, this Dad has gone to incredible lengths to make sure his son will be remembered forever.
When little Jackson Garwood was first diagnosed with a fatal condition called KRABBE disease, he was just a mere nine months old.
Darren, who is a site inspector from Tilbury, Essex, UK, wanted to make 100% sure that his son would never be forgotten, and so set out to write superhero stories about his super son, who he fondly refers to as “Jackson Superhero”. To this day, he has now written and published 10 books!
Dad Darren himself said:
“Our lives came crashing down when Jackson was diagnosed, I tried to blank it all out.
We were told he was only supposed to live until he was two.
I wanted to stop thinking, I wanted to sleep and never wake up.
But my wife, Rebecca made me realize – all Jackson has is us, and I needed to be there.”
Jackson’s harrowing condition has caused his nervous system to completely degenerate and the symptoms of this include irritability, choking, seizures and not to mention a loss of both developmental and motor skills. There is often also signs of blindness, paralysis, weight loss, and unexplained fevers. All in all, a truly, truly awful disease to suffer.
Jackson was born in August of 2014 and was developing normally up until he reached the age of nine months, which is when he stopped hitting his milestones and lost all ability to complete previously learned skills – such as being able to feed himself and picking up his own dummy himself.
Darren continued:
“[Rebecca] asked me if I thought he dreamt – and we wondered what he dreamt about.
I decided from that to write Jackson Superhero – he might not be able to do much – the condition affects everything including his brain – but I can help him dream by reading to him.
The books really don’t take long to write, a few days at most and I always like to use words that Jackson is familiar with.
I sent them off to publishers last February and was published by October 2018, I was thrilled when I’d sold 4,000 copies by Christmas.”
Once he was transferred to Great Ormond Street, his poor heartbroken parents were informed that Jackson was only the third ever case the hospital had seen in 25 whole years. Can you imagine?
However, Jackson has since defied doctors predictions as he now approaches his fifth birthday, which is amazing!
Since Jackson’s diagnosis his mom Rebecca has only been able to work one day a week as a recruitment agent, and the family have now had a second child – a two-year-old daughter named Seren. They are currently bravely taking each day as it comes.
Jackson superhero in the CBeebies house BBC England. Thank you #jacksononcbeebies please share
Posted by Jackson Superhero on Tuesday, 29 January 2019
Dad Darren added:
No child has gone this far, but the more research I’ve done, I’ve heard of a little boy who lived for eight years.
Creating ‘Jackson Superhero’ books means that although he may have lost his smile, I can make him happy by reading to him.
He’s in a body that doesn’t work but whilst he might not be able to be a walker, the books mean he can sprint around the world in his sleep.
want everyone to remember Jackson when he’s no longer here. ‘We had a little sister for Jackson – and I want her to know who Jackson was, and what he was like.
I’ve got plenty more planned such as Jackson’s solutions to the world’s pollution and I’m determined – my Jackson will have a legacy.
If you’re interested in owning your own copy of “Jackson Superhero, Jackson Saves an Owl” you can purchase it here from Amazon.
And if you’ve ever been affected in the same or similar way the parents are in this article or would like to send some encouraging words you can do so in the comments. Don’t forget to share this with your friends and family too so little Jackson can be known all around the world! x
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